Podcast: Being a Life Sciences Leader 

Being a Life Sciences Leader | Season 6 Episode 6

Guest Name: Kyle Bryant

Episode 6 features Kyle Bryant, Senior Director, rideATAXIA & Spokesperson, Friedreich's Ataxia Research Alliance (FARA). Hear Kyle's inspiring story of living with a rare disease, Friedreich's Ataxia, and how he incorporates his passion of cycling to empower those living with Friedreich's Ataxia and raise funds for research.

Being a Life Sciences Leader | Season 6 Episode 5

Guest Name: Rob Long

Episode 5 features Rob Long, Executive Director, Uplifting Athletes. Rob tells his inspiring story of being a D1 athlete and NFL draft prospect to persevering through a rare form of brain cancer. Tune in to learn more about Rob's experience and how Uplifting Athletes is leveraging the platform of sports to build a community that invests in the lives of people living with rare diseases.

Being a Life Sciences Leader | Season 6 Episode 4

Guest Name: Lesa Brackbill

Episode 4 features Lesa Brackbill, Director of Advocacy, Leukodystrophy Newborn Screening Action Network (LDNBS). Tune in to hear how Lesa and the LDNBS are advancing newborn screening for leukodystrophies, supporting newly-diagnosed families and collaborating with other leukodystrophy groups to inform and coordinate efforts between patients.

Being a Life Sciences Leader | Season 6 Episode 3

Guest Name: Marie Conley, The Conley Cushing's Disease Fund

Episode 3 features Marie Conley, Founder, Conley Cushing’s Disease Fund. Tune in and hear Marie's inspiring story living with a rare disease, her motivation to help others facing rare conditions through her work with the Pennsylvania Rare Disease Advisory Council (PARDAC) and how the Conley Cushing's Disease Fund is contributing to promoting awareness.

Being a Life Sciences Leader | Season 6 Episode 2

Guest Name: Pat Halpin-Murphy and Joanne Grossi, PA Breast Cancer Coalition

Episode 2 features Pat Halpin-Murphy, President & Founder, and Joanne Grossi, Executive Vice President of the PA Breast Cancer Coalition. Listen to their inspiring stories and experiences, the reason they are taking action in the fight against breast cancer and the contributions they have made to finding a cure.

Being a Life Sciences Leader | Season 6 Episode 1

Guest Name: Kristin Smedley, Curing Retinal Blindness Foundation

The latest episode features Kristin Smedley, mother of two children with retinal blindness. Kristin explains how she went from school teacher to advocate, sharing anecdotes of "wins and losses" in her fight for patient access.

Being a Life Sciences Leader Podcast | Season 5 Episode 10

Guest Name: John Crowley

In this episode, John Crowley, recipient of the 2024 Hubert J.P. Schoemaker Leadership Award, discusses how his children's diagnosis of a rare disease altered his career path to becoming a leader in the life sciences. Learn more about John's motivation to improve the lives of patients through his new role as President & CEO at BIO.

Being a Life Sciences Leader Podcast | Season 5 Episode 9

Guest Name: Jeffrey Dayno, MD

In this episode, Jeff Dayno, MD, recipient of the 2023 Frank Baldino Bioscience CEO of the Year Award, discusses his role as the CEO of Harmony Biosciences. Learn more about the leadership traits Jeff utilizes to combat external challenges, develop treatments for rare diseases and drive growth.